Eliana Tardío, is the mother of Emir & Ayelén, both with Down syndrome. Eliana is a successful professional in Marketing and Public Relations, who writes in different publications sharing her experience as the Latin mother of two children with special needs, giving her readers what she calls “The Best Advice for Any Human Being: Hope in Love .” She currently serves as the Director of the Parent Education Network, a program funded by the United States Department of Education, which offers training and support to families of children with disabilities.
National Organizations Join Forces To Publish New COVID-19 & Down Syndrome Resource
byNational Organizations Join Forces To Publish New COVID-19 & Down Syndrome Resource
According to a press release by Global Down Syndrome Foundation, an important new educational resource was released today by a consortium of national Down syndrome organizations. It has a great deal of undated information related to the impact of COVID-19…
Everything you Need to Know About Down Syndrome Priority for COVID Vaccine in Your State
byEverything you Need to Know About Down Syndrome Priority for COVID Vaccine in Your State
The Center for Disease Control lists Down syndrome as a condition that increases risk of severe illness. However, the decision on vaccine priority is up to the individual states who are distributing the vaccines. A state by state breakdown follows.
Our Baby Has Down Syndrome and Our Life is More Beautiful Because of It
byOur Baby Has Down Syndrome and Our Life is More Beautiful Because of It
Ana Belaval asked me something that I had been waiting to be asked since Mara was born: “How do you deal with people thinking that you had a picture perfect life – you are an author, and influencer, you have a good marriage, a beautiful son – but they now feel sorry that your life is no longer perfect because you had a child with Down syndrome?”
How Stephanie Frazier Makes Hospital Birthdays Special
byHow Stephanie Frazier Makes Hospital Birthdays Special
The mission of The Confetti Foundation is to supply birthday parties to children who have to spend their birthday at the hospital, pediatric oncology clinic or hospice facility. The foundation was started with the hope that families will be able to shift their focus from their child’s sickness for just 30 minutes and celebrate. Although the party is not a cure, it will be a welcome distraction and a good reminder that every child deserves to be celebrated.
Helpful Resources After a Down Syndrome Diagnosis
byHelpful Resources After a Down Syndrome Diagnosis
If you have just received a diagnosis that your baby has or will be born with Down syndrome, you are likely shocked, frightened, and searching for answers. Those feelings are completely normal, but it is my experience that those initial feelings are very misleading. I have also come to learn that not all doctors are well informed to be able to assist you in learning about what you, your baby, and your family might face. So we have tried to share here some of the better resources we have found and others that were recommended to us.