During my pregnancy with Mara, I found myself having to educate doctors about they way to deliver certain messages they believed I needed to hear to prepare to have a baby with Down syndrome. “You must know that 40% of babies with Down syndrome are born with a heart defect” was the first warning I was given about the apparently terrifying life that was awaiting for me. Right there and then, with my little baby still in my belly, I decided to change the conversation.
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Having My Daughter With Down Syndrome Is Not Brave
byHaving My Daughter With Down Syndrome Is Not Brave
It had been just a few days since I heard the numbing words “your baby has Down syndrome” when I received a message from a close family member that said: “I am very proud of you for choosing to have your baby. You are really brave”. I was still processing my feelings. In no way was I in a good place as I read those words.