During my pregnancy with Mara, I found myself having to educate doctors about they way to deliver certain messages they believed I needed to hear to prepare to have a baby with Down syndrome. “You must know that 40% of babies with Down syndrome are born with a heart defect” was the first warning I was given about the apparently terrifying life that was awaiting for me. Right there and then, with my little baby still in my belly, I decided to change the conversation.