Teaching sign language to kids with Down syndrome is common. So I know this opinion may ruffle some feathers. But I believe there that may be a negative side to teaching sign language. Particularly to the extent that it is often used to replace verbal language for younger children with Down syndrome.
A few months back, I read the BEST simple explanation about thyroid function and why checking only TSH and T4 is not enough. Most importantly, why TSH and T4 alone may not be the right way to choose treatment if medication is needed.
Can you imagine a doctor showing up to surgery without knowing how to operate, but still going to the operating room to give it a good effort? That doctor simply operating and hoping for the best? As crazy as this sounds, this sort of medical care is what MANY mothers of children with Down syndrome face daily when taking their children to the pediatrician.
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After seeing parallel bars used for young children to assist them in walking, PVC seemed like a good option. There were no resources we found with plans for making them for Mara. But we used a few pictures we found and relied on the advice of our friend and therapist Kailee @themovementmama to determine the height of the bars to make this for Mara.
I get asked how to handle tantrums so so often on my Instagram account, so a few weeks ago I decided to invite an expert to talk about the subject. And this now she is back to share some more insight on dealing with tantrums when there is more than one child needing your attention.
Ana Belaval asked me something that I had been waiting to be asked since Mara was born: “How do you deal with people thinking that you had a picture perfect life – you are an author, and influencer, you have a good marriage, a beautiful son – but they now feel sorry that your life is no longer perfect because you had a child with Down syndrome?”
Have you ever heard “Babies need to learn to self-sooth”. That’s the premise behind “cry it out”. Well, I am here to tell you that allowing your kid to cry it out may have terrible long term effects. And I am not sharing this to shame anybody. I am sharing this because we can only do better when we know better.
In honor of Down Syndrome Awareness Month, I want to share my views on the three pieces of advice that you CAN IGNORE after receiving a Down syndrome diagnosis for your child.
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